Yesturday, after a horrible morning of low back pain and a sore throat (again) I took some bood pressure measurents from home for my electrophysiologist, to determine if I need to stop the Verapamil, or increase it again. (I already increased it once, because i’m not noticing any change on it.)
Verapamil is a cacium channel blocker, which is kind of like a beta blocker…but it’s goal is to control my Atrial Tachycardia arrhythmia, and it also can be used for high blood pressure.
Since I had no idea which measurements they wanted (sitting,laying,standing), I took all three. I layed down for about 10 minutes (like I do at the office) and then stood up,
and WOAH- that was dangerous!
My vision went completely black for like a minute, and i felt like I was about to pass-out. (Update, my vision has been going black a lot now…)
(My blood pressure went from 98/65 laying down, to 129/86 standing up!)
The hr went from about 73 – 102.(According to my bp monitor, it was probably higher)
If you haven’t figured it out already from my previous posts, here is a great big list of everything I have to/have had to endure thus far:
- “Extreme exercise Intolerance” aka when I exert myself my heart rate goes up very high, very quickly, causing me to become lightheaded/dizzy/feel like I’m going to pass-out (although I never have, yet.) My heart pounds through my chest, and I get disturbing palpitations where my heart THUMPS so hard, that it makes me cough! (After having stopped exercising because of the lightheadedness I now also began having chest pain when I try to exercise.)
- Also take a long time to recover from exercise (3-4) days, and I am exhausted on those days.
- Shortness of breathe with exercise
- High heart-rate/ Dizziness when standing. (Vision sometimes goes black.)
- Fatigue. All the time… Suddenly become randomly exhausted sometimes during the day. (May be due to my arrhythmia.)
- Nausea/ Discomfort after eating while upright.Along with bloating and belching. That’s right. I have to eat while either slouching back or laying back in a chair. This symptom has progressively worse and causes huge problems..:(
- Cannot tolerate sitting straight upright at all- w/out tachycardia, lightheadedness/ dizziness. Or standing still, or walking for a long time. I either have to be leaned back or laying down.
- Hyperhydrosis- aka excessive sweating. Enough said.
- Chronic (episodes of) muscle spasms, joint pain, random frequent sore throats, swollen glands, fatigue (possibly CFS, Ankylosing Spondylitis -Arthritis)
- Mild Kypho- Scoliosis (~16°)
- Concentration and Memory problems, aka “brain fog.”
- sensory overstimulation.
- Disorientation almost (like poor mental clarity and slow thinking.Its also harder for me to have a conversation while sitting/standing upright.)
- Previous random, monthly vomiting.(only vomited 1x per incident.)
- Ocassional finger/hand numbness and tingling. Cold hands.
- Possible “absence seizures” in middle school. Possible “panic attacks” (which I believe was the new diagnosis’ all along…)
- “Borderline- exercise induced athsma” (also probably the other problem’s)
- “Light Flashes” in vision. (1 spot of light that’s either white, orange or blue and lasts ~1 sec.) Happens several times per day.
I think thats everything major…
After reading all that, here’s a daily dose of relaxation from st pete beach!
(We took a much needed break to the beach on Wednesday 🙂 )
From Monday to Wednesday next week (24th-26th) for every picture posted on this page https://www.facebook.com/events/670923763063841/ of someone wearing turquoise
Cutting Edge Kitchen and Bath in Arlington, Washington will donate $1 to Dysautonomia International to help find a cure!
🙂
I still haven’t heard anything from Vanderbilt… but I’ll be sure to let you all know!
Have a great weekend! 🙂
Tired And Tachy 