Just wanted to update on whats been going on recently, since its been quiet a while since I’ve posted last!
Today I had my yearly optometry/contact lens visit. She looked over the reports from the retina specialist and neuro-oplthalmologist and confirmed there doesn’t seem to be anything structural that could explain the light flashes in my vision, so its likely neurological!
Like a week and a half ago, my lips and cheeks and chin suddenly felt uncomfortably numb and tingly, but i just thought maybe i slept wrong or something and it would go away. Well like a week later it didnt, so i contacted my drs office and one of the nurses advised me to go to the Er! (Because i also advised them of 2 more near-passing out episodes i had) and said id been dizzy, but they werent at the same time. I didnt go to the ER though, because i thought well its been a week and it hasnt killed me yet?! 😂 but seriously i wasn’t that concerned.
With my doubts, i still wanted to know of anybody else had felt this before, so i asked some people on facebook. and one of them -in an almost urgent tone- said i should get checked for chiari malformation (a brain abnormality) and cervical/cranial instability. She shared a picture of the symptoms with me and lo and behold! Light flashes -or photopsia- was one of them!
I will say that there are some symptoms that I dont have though, like headaches; but the form I would most likey have called adult chiari or type 1, can be symptom less.
If i do have this, it would explain my back of the head pain, neck pain, numbness and tingling in my hands/fingers, and maybe even my scoliosis!
Theres a potential cure for this too, which involves some kind of brain surgery, but that would be great if this is what i have, that there could be a fix to some of my symptoms! 🙂
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I contacted my electrophysilogist’s nurse to hopefully get her opinion about this numbness/tingling in my face, (and see if maybe it’s pots related) and i asked her about the chiari, and if i could possibly get and mri… and hopefully I will hear back from her soon!
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*Update: The nurse asked the dr, and said its not pots related, and i should to go to neurologist. I see my family dr on the 24th. Hopefully she’ll be able to find what’s going on. 
… I’ll update soon!
Tired And Tachy 